The Difficult Early Years
Sam's toddler years were not easy for me as a father.
I've mentioned it elsewhere: Sam sometimes cried for up to three hours straight, woke up at least every two hours at night, and during the day was often impossible to calm.
And I didn't know why.
This not knowing repeatedly put me in situations that led to confrontations. To raised voices. And unfortunately, to words I'm not proud of today.
I wanted things to work. I wanted him to "cooperate." I wanted him to understand.
I was the adult, after all.
But that was exactly the problem: I had no solutions, only expectations.
The Internal Conflict
At the end of such days, I kept telling myself: This isn't who I want to be.
And at the same time, I didn't know how to do it differently.
When my wife suggested getting Sam evaluated, my first reaction was rejection.
I thought it was "totally wrong."
In my mind, it meant:
- a label
- a box
- a lifelong stigma
I was afraid something would be "forced" on him.
The Real Turning Point
Looking back, I have to say clearly: That diagnosis was the game changer.
Not for Sam – but for me.
Suddenly the behavior had a framework. An explanation. A context.
I could specifically engage with the topic, educate myself, and adjust my own behavior.
No longer from gut instinct, but with understanding.
When Understanding Replaces Guilt
With knowledge came change. With change came relief.
The situation at home became calmer. More structured. More predictable.
And with it, something disappeared that had accompanied me for a long time: guilt.
Not because I became perfect. But because I understood why things escalate – and how to prevent them.
"I was mean today" eventually stopped being a daily theme.
Not because there are no more difficult days, but because there are options for action.
What the Science Says
Parents of children on the autism spectrum report significantly more often of:
- chronic stress
- feeling overwhelmed
- feelings of guilt and failure
Studies show these feelings don't arise from lack of parental competence, but from:
- lack of knowledge
- persistent sleep deprivation
- repeated escalations without explanation
Research also proves that early diagnosis and psychoeducational support for parents not only helps the child, but significantly increases parental self-efficacy.
With growing understanding, guilt decreases while empathy, regulation, and relationship quality increase.
Sources (Selection):
Hastings & Brown (2002)
Karst & Van Hecke (2012)
DSM-5-TR: Autism Spectrum Disorder
American Psychological Association
What We've Learned
Guilt is a sign of responsibility. But it's not a good guide.
Knowledge, structure, and understanding don't replace perfect parenting – but they create a better foundation.
And sometimes the most important step isn't doing everything right, but understanding why it goes wrong.